Rare Disease Day is February 28 [Infographic]
by Brandpoint (ARA) Sponsored Content
Feb 25, 2013 | 16653 views | 0 0 comments | 203 203 recommendations | email to a friend | print
Millions of Americans will join others around the world this month in observing Rare Disease Day (February 28). They hope to help draw attention to rare diseases and the unique challenges faced by the nearly 30 million Americans affected by them. Because of the rarity of their conditions, patients are often challenged to find information, knowledgeable doctors and support for their condition. One such disease is Cryopyrin-Associated Periodic Syndromes (CAPS) – a serious, lifelong autoinflammatory disease that affects about one in one million people in the United States. Because there are so few CAPS patients, online resources play an important role in uniting the community. CAPSConnectsUs.com, a new educational website from Novartis Pharmaceuticals Corporation, enables CAPS patients in the United States to connect online to share their stories, encouragement and advice about managing daily challenges.

Comments-icon Post a Comment
No Comments Yet

We encourage your online comments in this public forum, but please keep them respectful and constructive. This is not a forum for personal attacks, libelous statements, profanity or racist slurs. Readers may report such inappropriate comments by e-mailing the editor at news@pattersonirrigator.com.